SINBAD Datasets

Short standardised datasets (S.IN.B.A.D.s)

This page is currently still under construction. If you would like to help its creation or improvement please register as a wisdam initiative co-worker.

For the present some comments are included here but in time there will be hyperlinks to a full analysis of each data item as suggested in the SINBADs chapter of the Electronic Encyclopaedia of Perinatal Data.

S.IN.B.A.D. = a Short INter-program Bundle of Associated Data

Why?

1. To encourage standardisation of groups of data recorded or printed on the first few pages of the proposed individually held paper personal wisdam folder.

2. To allow the standardisation of groups of data items used to create personalised sticky labels

3. To standardise the detailed data content of a whole set of personalised QR codes.

• Standardisation will then:

a) Facilitate the printing of QR squares on the main pages of all wisdam casenotes

b) Encourage many different health and social care systems to use an App on a smart phone to read small groups of data and add data to their different databases without having to do any data re-entry. Remembering the crucial slogan Every Extra Keystroke Costs (Ref)

c) By this means encourage the international standardisation of the same small sets of data. Once such standardisation has been agreed then these same sinbads can be universally used to transfer electronic data from one database directly electronically to another.

Major Advantage

Standardising groups of long term data will save hours of staff and lay time asking the same semi-permanent questions

a) every time a new paper proforma is completed

b) every time the same semi-permanent data needs to entered into yet another incompatible computer system.

Standard or Optional Data Items

Items without brackets are normally part of the dataset used for every sticky label sinbad or QR code. Items in square brackets are optional and each individual must be the person who decides whether they should or should not be included in any particular sticky label or QR code.

Personal Sinbad

A10.. Family Name (Individual)

A11. First Name (Individual)

A12 Likes to be called (Individual)

A13 Maiden Name (Individual)

A14. [Full set of Initials] (Individual)

Comments: Never for automatically printing out or distributing but is useful as a security check since often the full name may only be known to the individual themselves e.g. Until the last series only Inspector Morse himself knew what his middle initial stood for.

A15. Date of Birth (Individual)

Comment: Always DD/MM/YYYY -Allowing Age to be calculated and printed whenever needed. More and more people are living to be over 100 years old so the full year is essential to distinguish Age: 3 from Age 103.

Address

Need to correlate these with HL7

B11. Address Line 1 House or Apartment Suite Number or Name (Individual)

B12. Address Line 2. Street or Apartment Block Name (Individual)

B13. Address Line 3. Town, District, Suburb or Village Name (Individual)

B14. Address Line 4. City, County, Province, State Name (Individual)

B15. Address Line 5. Country (Individual)

B16. Postcode/Zipcode

Contacts - Numbers/Names

C10 [Mobile]

C11 [Home]

C12 [Work]

C13 [e-mail]

C14 [Skype Name]

Identity Numbers

D10. [Identity/Passport Number]

D20. [Social Care Number]

D30. [Health Care Number]

D40 [Primary Health Care Centre Number]

D50 [Local Hospital Number]

Draft Personal Sinbad CSV

Likes to be called, First Name, Family Name, Maiden Name, Initials, Date of Birth, Number/Name of House/Apartment, Street, Town/District/Suburb/Village, City/County/Province/State, Country, Postcode/Zipcode,Mobile, Home, Work, e-mail, Skype Name, Passport/Identity Number, Social Care Number, Health Care Number, Primary Health Care Centre Number, Local Hospital Number.

Next of Kin Sinbad

Name (N of K)

E10 Likes to be called (N of K)

E11 [First Name] (N of K)

E12 Family Name (N of K)

Habits and Recreational Drugs

Exercise

Sugar intake

Alcohol

Smoking

Basic Medical Data

Height

Weight

Blood Pressure

Blood Group

Addresses (N of K)

F21. Address Line 1 House or Apartment Suite Number or Name (N of K)

F22. Address Line 2. Street or Apartment Block Name (N of K)

F23. Address Line 3. Town, District, Suburb or Village Name (N of K)

F24. Address Line 4. City, County, Province, State or local equivalent (N of K)

F25. Address Line 5. Country (N of K)

Telephone Numbers (N of K)

G20 Mobile (N of K)

G21 Home (N of K)

G22 Work (N of K)

Long Term Handicap Sinbad

H10 Any Handicaps?

H20 Sight Problems?

H30 Hearing Problems?

H40 Language Problems?

H41 Interpreter Needed?

Separate Sinbads for each Institution/Organisation

IP. Primary Health Centre

Name

Code

Address

Appointments Telephone

Prescription Telephone

Name of Family Doctor

M. Long-Term/Permanent Medical Problems?

Lots more work to be done here. See EEPDwiki and Whole Tooth Dental Practice Medical and Dental Questionnaire

M10 Any Long-Term/Permanent Medical Problems?

M20 Allergies (Possible/ probable/definite)

M30 Insulin dependent diabetes

M40 Gluten sensitivity malabsorption (Coeliac)

M50 Confirmed, Serious Neoplasia

M60 Significant Obesity

Universal Medical ID Engraving service. UMID, POBox 1099, Bedford, MK42 7XR, United Kingdom. Freephone 0800 055 6504 make the following suggestions for engraving:

Diabetes, Hypoglycaemia, Alzheimer’s, Angina, Heart Patient, Abnormal ECG, Pacemaker, Haemophilia, Epilepsy, Seizure Disorder, Renal Failure, Multiple Sclerosis, Asthma, Glaucoma, Vision Impaired, Other (free text)

or in Alphabetical Order: Abnormal ECG, Alzheimer’s, Angina, Asthma, Diabetes, Epilepsy/Seizure Disorder, Glaucoma, Haemophilia, Heart Patient, Hypoglycaemia, Pacemaker, Renal Failure, Multiple Sclerosis, Vision Impaired, Other (free text)

P. Separate Sinbad for each Pregnancy

P1. First Pregnancy

P2. Second Pregnancy etc

RX. Medications

In time the aim should be for each prescription to have a QR code printed which will allow any smart phone to read the medications currently prescribed.

S. Separate Sinbad for each episode of major surgery

S1. First Major Past Surgery Episode etc

W. Separate Sinbad for each kind of Care Worker

Not all of these will be relevant to every patient

WS. Social Worker

Name

WS10. Social Worker Name

WS20 Individual Code

Place of Work

WS30 Place of Work Code

WS31-35 Address

Contact Tels/Names

WS40 Work (Social Worker)

WS41 Mobile

WS42 Emergency Telephone

WN. District Nurse

Name

Code

Address

Contact Telephone

Emergency Telephone

WM. Named Midwife

Name

Code

Address

Contact Telephone

Emergency Telephone

WD. Dentist

Name

Code

Address

Contact Telephone

Emergency Telephone

WO. Optician

Name

Code

Address

Contact Telephone

Emergency Telephone

WE. Hearing Specialist

Name

Code

Address

Contact Telephone

Emergency Telephone

WA. Occupational Therapist

Name

Code

Address

Contact Telephone

Emergency Telephone

WP. Physiotherapist

Name

Code

Address

Contact Telephone

Emergency Telephone

WF. Podiatrist

Name

Code

Address

Contact Telephone

Emergency Telephone

WH. Hairdresser

Name

Code

Address

Contact Telephone

Emergency Telephone

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