[With each Individual: Social, Demographic And Medical]
Unlike most healthcare records (paper and electronic), that are owned and controlled by institutions or organisations such as the NHS, the Government, Primary Health Centres, Social Work Departments or Dental Practices, Opticians, any record which is part of the wisdam initiative is totally the property of the purchaser.
Even a modern car does not rely on an 'electronic' log book. It still makes far more sense to have a paper log book which physically stays with the car.
In our ever more complex world, it is suggested that every housebound person also needs a 'log book' - WISDAM record - which stays with them wherever they go! Download a free health questionnaire file to get started.
The Wisdam initiative thus provides, for the first time in both paper and electronic formats designed to be complementary to each other, a fully unified and interoperative system of medical and social care records which is personally-held and personally-owned so that every detail can be personally checked, amended and kept up to date by each individual (or if necessary by an authorised person acting in their presence and on their behalf).
You can also buy a Wisdam Personal Healthcare Folder - an ideal place to file copies of referral letters, test results, patient information leaflets, self-monitoring charts or any other similar paperwork. It also provides purchasers with
- An introductory information pack about such things as the right of all NHS patients to see their own electronic medical record
- A 'Pack of Potential Pages" from which purchasers can select whichever preprinted pages that they might find useful, e.g. a page to list all the different healthcare contacts, or a page of information about healthcare Apps or Websites or other ressources to help in self care or self monitoring.
- A box to be kept in the fridge with information for carers or paramedics on where the Wisdam Record is normally kept.
Complementary Digital Record
An Electronic Record created using the Wisdam App (in preparation) is a complementary digital record owned by each individual, where much of the same information can be recorded and stored with good back-up and security on an appropriate device, such as PC, tablet or smartphone.
Unlike all the multitude of paper and electronic records held and owned by many different institutions and organisations in permanently incompatible databases or filing systems, there will only be ONE master paper wisdam record for each individual (Photocopies may of course be made, but each paper original will remain unique)
And, since an electronic wisdam record is owned and controlled by the individual, this version is also has the potential to be both unique and more up-to-date and accurate than other healthcare records held in digital format.
Presenting Problem or Need
There is still no proper NHS classification by presenting problem or need. How can you assess outcomes without starting with what arrives at primary and secondary centres needing healthcare? For example, the system still assesses the outcomes of ectopics without assessing the outcome of women of childbearing age who present to the NHS with intermittent abdominal pain or unexplaned fainting or sudden unexplained anaemia etc.
The Wisdam record includes a whole set of simple forms asking flow-patterned basic health and social care questions and answers for people to fill in themselves by hand. These may be downloaded in our Downloads section.
At present, each Primary Health Centre (PHC) seems to ask every new patient to complete a paper form by hand. These forms have been different in every PHC I have so far checked - and are of greatly varying quality.
A path to greater standardisation
The wisdam initiative can encourage standardisation in the development of internationally-accepted datasets for such things as "Legal Next of Kin?", "Language and Handicaps?", "Who to call in an Emergency?"
Sonic Data Capture Technology
In addition, exciting work has now started with colleagues in India to use this new method to allow information written on ordinary printed forms to be automatically converted into draft digital data, which can in turn be used to create personalised QR codes to be printed out as part of each person's record.
The Wisdam App
Funds generated through the sale of basic wisdam records will be used to create the App to do the same thing via any tablet or smart phone.
Anyone who might be interested in working with us on this ground breaking project should get in touch.
Intellectual Property Rights
The wisdam concept and associated websites have both so far been created entirely in their own time and at their personal expense by Rupert Fawdry and Helga Perry.
For this reason, the name “Wisdam” when applied to personal health records and also when applied to the design of wisdam unified health and social care records is the intellectual property of Dr Rupert Fawdry and Helga Perry. 2013
And Dr Rupert Fawdry and Helga Perry have asserted their rights to be identified as the authors of this Work in accordance with the Copyright, Designs and Patents Act 1988.
Contact: Dr Rupert Fawdry Mobile: 07768974413 Home: 01525 37 01 37 Skype: Rupert Fawdry e-mail: firstname.lastname@example.org
The wisdam concept, the 2-dimensional (paper forms) and the flow pattern and wording of questions and allowable answer options are released under a Creative Commons Attribution Non-Commercial Share Alike licence.
But the 3 dimensional wisdam casenotes designs are the Intellectual Property and Design Right of Rupert Fawdry FRCS, FRCOG and Helga Perry MPhil, BA (Hons), Dip.Lib., both of Wisdam Enterprises.
Years of Frustration
Rupert Fawdry has been a frustrated observer for almost 30 years, watching while over £½ million has been spent three times on three different major government maternity IT projects, which have rarely provided or encouraged good maternity ICT, but instead have focused on jumping through management hoops at the expense of midwife time being spent on care of expectant mothers.
He long ago recognised the fact that departmental electronic records will only become interoperative after a major internet-based debate on the flow-pattern and wording of an internationally agreed set of questions and all allowable answer options.
Therefore, he created the Electronic Encyclopaedia of Personal (previously Perinatal) Data
Wisdam Enterprises now exists as a sole trader not-for-profit business
Future developments, especially the creation of an App to allow users to enter their own electronic data, will depend on such income as
a) may be generated by sales of the wisdam paper records,
b) may be invested in the company as venture capital and/or
c) any donations from those who see the value of the wisdam initiative.
Basic Design of a Wisdam Record
A wisdam folder now consists of 10 sections as follows:
- Problems and Needs, Diagnostic Labels, Unified Care Log, Who’s Who, My Appointments, Hints to remind me of my Passwords
- Medication & Monitoring, DNACPR.Self-help Organisations and Apps
- Healthcare contacts. My Carers Names and the Organisations providing care, Feed back Forms
- Local and National Contact Information
- About Me and My Health. A detailed set of questions covering all aspects of medical and social care - available for free download from the Downloads page.
- Correspondence (most recent on top)
- Test Results (most recent on top)
- Consents and Requests. Recommended Patient Information Resources
- Selected Advertisements
- Plain Paper and/or Sticky Labels
So that carers have information about recently prescribed medication, the user is encouraged to keep Repeat prescription request forms in the front flap of the wisdam record.
Types of Wisdam Records
A. BASIC version available here
This version does not require any computerisation.
It does, however, include all the sections listed above, mainly as a place to file all the medical and social care paperwork that is increasingly being made available to the public
and which is regularly needed whenever a patient attends a different institution, since every institution nearly always has an incompatible electronic record, with no access available elsewhere
B. A WisdamQR version (in preparation)
This will involve the same sections listed above, but will make extensive use of QR codes, probably between 20-30 for each individual.
The cost will depend on the number of Basic records sold, and whatever subsidies advertisers might be willing to offer a highly selected potential market.
Most current healthcare and social ICT systems are based on institutions or organisations. In Britain, most involve the use of incompatible electronic databases, and every institution has hundreds of differently designed paper forms.
The WISDAM concept is based on the conviction that the master copy of all health and social care records must in future be based - NOT on institutions or organisations - but on each individual person. The complexity and increasing specialisation of different aspects of medical and social care means that the 'hub' of each person's record - whether electronic or paper based - must be with each individual (BMJ 30 July 2012)
BUT WHY IS PAPER STILL SO IMPORTANT?
Because, for at least the next ten years or possibly far longer, it is unreasonable to believe that everyone, everywhere, will at all times have immediate and completely reliable uninterrupted Internet/WiFi access. This is especially true when family, friends and neighbours will play a vital role in health and social care.
Indeed, it also seems likely that power cuts will become more common. No electricity means no electronic record, no Wi-Fi, no printer-accessible information.
Any time or place without Internet access - then no access to electronic data outside local computer system.
As many thousands of people worldwide well understand.
The WISDAM initiative therefore fully takes into account the fact that the future will not, as some have fantasised, all be paperless; indeed, the increasing use of paper seen almost everywhere makes it seem unlikely that it will even be paper-light.
BUT INSTEAD IN FUTURE
Medical and Social Healthcare Records will probably always need to involve the right hybrid of both "Chips" and "Paper". (and Sticky Labels)
1) Because of the cost and time it takes to write software code it will almost certainly never be affordable for all health and social databases to "talk" to each other. Everyone's medical and social care will therefore continue to involve multiple incompatible electronic databases. As a result in the primary healthcare system but not the social care version the record should instantly include medical test results as soon as available but will not include the fact that an appointment has been made for a social worker to visited the client at home tomorrow. The dentist's database will need to have medication and allergy information but will not need the name a the surgeon who operated on this patient the previous week.
Such systems cannot be always up to date with things which happen at times and places where internet access is not constantly and reliably available.
2) A parallel paper master copy which should always be kept up to date with all that is happening to each individual
which will for example note that this person has or has not taken their evening medication, or has fallen at home and an ambulance has been called but has not yet arrived
Need for the Wisdom (Wisdam?) of Crowds
If we are to make full use of the potential for electronic records to improve medical and social care in a cost effective way, it is essential that
- there is a move to standardise internationally the flow pattern and exact wording of groups of health and social care questions and all allowable answers
- there is recognition that this is such a major task that it requires the wisdom of crowds on a series of Internet (wisdam?) wiki websites
As is already the case with all UK antenatal care, all housebound or institutionalised or chronically ill patients will in future need to have ONE hand-held PAPER master copy record and SEVERAL DIFFERENT - but partially compatible - ELECTRONIC database records.